Ethnicity and health-related quality of life in the post stroke population: a systematic review.

Background/objective: A systematic review was conducted on the association between ethnicity and health-related quality of life in post-stroke populations.

Methods: In February 2024, a comprehensive search was conducted across several databases. Studies were included when they had at least 2 distinct ethnic post-stroke groups for comparison, along with the utilization of validated questionnaires to measure health-related quality of life.

The psychometric properties of the PROMIS® profile CAT in people with stroke.

Background: The Patient-Reported Outcomes Measurement Information System® (PROMIS) Profile Computer Adaptive Testing (CAT) consists of seven CATs and one single item measuring most relevant aspects of health-related quality of life (HRQoL). The aim of our study was to determine construct validity and floor and ceiling effects of the PROMIS Profile CAT in Dutch people with stroke.

Methods: People with stroke receiving rehabilitation completed the PROMIS Profile CAT and the EuroQol-5 dimensions (EQ5D).

Ethnic disparities in long-term outcomes and health care usage after stroke in the Netherlands.

Background: Poststroke health-related quality of life (HRQOL) is an important outcome that may be influenced by ethnicity.

Objective: To compare long-term HRQOL, mental health and healthcare utilization between stroke survivors with a European (EUB) and non-European background (NEUB) in a hospital population.

Methods: In this retrospective cohort study patients completed questionnaires 2-5 years after stroke.

Stroke survivors' long-term participation in paid employment.

Background: Knowledge on long-term participation is scarce for patients with paid employment at the time of stroke.

Objective: Describe the characteristics and the course of participation (paid employment and overall participation) in patients who did and did not remain in paid employment.

Methods: Patients with paid employment at the time of stroke completed questions on work up to 30 months after starting rehabilitation, and the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-P, Frequency, Restrictions and Satisfaction scales) up to 24 months.

The trajectory of pain and pain intensity in the upper extremity after stroke over time: a prospective study in a rehabilitation population.

Purpose: To assess the presence of upper extremity pain after stroke over time and the course of its intensity in patients with persistent pain.

Materials And Methods: Patients with stroke completed a question on the presence of upper extremity pain (yes/no) and rated its intensity with a visual analogue scale (0-10) at 3, 18, and 30 months after starting multidisciplinary rehabilitation. The presence of upper extremity pain and its intensity over time were analysed with Generalized Estimating Equations models and Linear Mixed Models, respectively.