Publications by authors named "H A Merrick"
Background: Autistic people commonly have physical and mental health conditions. They also frequently experience barriers to accessing healthcare, contributing to problems identifying and treating health conditions. These factors may lead to increased and earlier morbidity and lower average life expectancy for autistic people.
View Article and Find Full Text PDFHeparan sulfate (HS) and chondroitin sulfate (CS) proteoglycans (PG) consist of a core protein to which the glycosaminoglycan (GAG) chains, HS or CS, are attached through a common linker tetrasaccharide. In the extracellular space, they are involved in the regulation of cell communication, assuring development and homeostasis. The HSPG biosynthetic pathway has documented 51 genes, with many diseases associated to defects in some of them.
View Article and Find Full Text PDFArticle Synopsis
- The study focused on how families of children with neurodisabilities in England experienced changes in health, education, and social care services during the COVID-19 pandemic.
- It involved qualitative interviews with 48 parent carers and 9 young people, revealing significant disruptions in communication and access to services.
- Four key themes emerged: poor communication of changes, varying access to services, detrimental impacts on families, and recommendations for future emergencies.
Aim: To seek consensus on recommendations for the delivery of services to disabled children in England during future emergencies.
Method: Candidate recommendations were drafted based on our related mapping review and qualitative research related to experiences during the COVID-19 pandemic. Iterative workshops with professionals and parent carers helped to refine the recommendations.
Objectives: To understand how health, education and social care services for disabled children changed during the COVID-19 pandemic, what did or did not work well and what the impacts of service changes were on both professionals and families.
Design: Qualitative study using semistructured interviews.
Setting: Telephone and video call interviews and focus groups with professionals working in one of five local authority areas in England.