Publications by authors named "Guillemette Lienhart"

Article Synopsis
  • X-linked hypophosphatemia (XLH) is a rare, disabling disease that requires a coordinated approach from various healthcare specialists due to the diverse needs of patients and caregivers.
  • To better understand these needs, focus groups were organized with XLH children, adults, and caregivers, guided by trained professionals, to discuss their daily experiences and quality of life.
  • The findings highlighted key areas of need such as knowledge about XLH, treatment options, dental care, and adapted physical activities, which were used to develop educational sessions and a therapeutic education program tailored to XLH patients and their caregivers.
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Background: Considered the most prevalent noncommunicable disease in childhood, dental caries is both an individual and a collective burden. While international guidelines highlight prevention as a major strategy for caries management in children, health professionals still struggle to implement prevention into their clinical practice. Further research is needed to understand the gap between the theoretical significance of dental prevention and its lack of implementation in the clinical setting.

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Article Synopsis
  • * This study will explore how medical and dental professionals perceive children with early childhood caries (ECC) and their families through interviews, analyzing their attitudes and beliefs.
  • * The research has received ethics approval and aims to publish findings in academic journals and share them at scientific conferences.
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Papillon-Lefèvre syndrome (PLS) is a rare disorder that leads to symptoms including the early progressive loss of deciduous and permanent teeth. Prosthodontic management of children and adolescents affected by PLS sometimes requires an immediate complete denture. Tooth mobility presents a challenge to the dentist, especially during impression-making.

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