Phys Med Rehabil Clin N Am
February 2025
The individual with spinal cord injury is the most important member of the interdisciplinary team of health care professionals who provide care and researchers who progress treatments. The consumer voice is critical to understanding priorities and preferences. A literature search was conducted to identify consumer-level contribution, yielding 68 articles.
View Article and Find Full Text PDFObjective: To assess the feasibility of a team-based prognosis and treatment goal discussion for women living with advanced breast cancer.
Methods: Female patients diagnosed with advanced breast cancer (n = 25) participated in a mixed methods study that evaluated the feasibility and effects of a planned and structured prognosis discussion. Audio analysis of the intervention appointments was conducted to assess intervention feasibility.
By examining mental illness through the lens of intimate firsthand accounts of caregivers and patients, including caregiver blogposts and a conversation between Liza Long and her son as recorded by StoryCorps, we demonstrate how new media can be leveraged to shift societal perceptions of those with mental illness from blameworthy potential perpetrators of terror to vulnerable persons in need of compassion and support. Exploring patient, caregiver, and societal roles through a close reading of new media firsthand accounts, we argue for shared responsibility in caring for those with mental illness and, in particular, for physicians to leverage their unique knowledge of the patient experience by promoting media coverage of stories of mental illness recovery.
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