Publications by authors named "Francesco Cucuzza"

Article Synopsis
  • - A study was conducted to gather updated insights on the psychosocial issues faced by adult people with hemophilia (PwH) and caregivers of children with hemophilia (CPwH) in Italy, as previous data was outdated and insufficient.
  • - Surveys were administered to 120 adult PwH and 79 CPwH from November 2019 to June 2020, revealing significant impairments in work, family relationships, and social interactions among adult patients, while caregivers generally reported better psychosocial outcomes.
  • - Key findings showed that both PwH and CPwH struggled with mobility, pain, and mental health, highlighting the need for increased genetic counseling and psychological support, since many were unaware of their carrier status and lacked
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Introduction: Haemophilia management and patients' quality of life significantly improved. However, data on current patients', caregivers' and clinicians' satisfaction and limitations of treatments and haemophilia management are limited.

Aim: Assessing the management satisfaction and unmet needs from the perspective of Italian patients with haemophilia (PWH) without inhibitors (or caregivers if children) and of specialist physicians.

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