Introduction: Primary immunodeficiency diseases (PIDs) are chronic diseases that affect the various aspects of a patient's life. However, the impact of living with PIDs is poorly described.
Objective: This study aimed to explore the living experience challenges among the Malaysian caregivers of the patients with PID who underwent a follow-up in the Universiti Sains Malaysia or those registered members of the Malaysian PIDs Society.
Objective: To investigate the psychosocial impact of COVID-19 on Malaysian families.
Design: A cross-sectional study performed using an anonymous online questionnaire distributed through social media, email and the Department of Social Welfare.
Setting: Malaysian families were invited to answer the questionnaires.