Enhancing patients' role in scientific writing: insights from a global participatory approach with people with multiple sclerosis.

Introduction: This study aims to describe a participatory process by investigating the perceptions and expectations of people with multiple sclerosis (pwMS) toward the scientific writing (SW) process and the role of patient engagement and quality of life in influencing them.

Methods: A two-phase, multi-methods study was conducted inspired by the MULTI-ACT model. Four co-creation workshops were organized, and the results were used to design a survey, which was translated into eight languages and distributed internationally to 1120 patients.

Predictors of clinically significant anxiety in people with multiple sclerosis: A one-year follow-up study.

Background: Mood disorders, such as depression and anxiety, are frequent in people with Multiple Sclerosis (PwMS). Although anxiety has a well-recognized negative influence on family, work and social life, it has received less attention than depression. Thus, it is still under debate which risk factors can predict anxiety, its evolution over time and the extent of its effect on disability progression.