Hereditary neuromuscular disease and multicomposite subjective health status: feasibility, internal consistency and test-retest reliability in the French version of the Nottingham Health Profile, the ISPN.

Objective: To evaluate the feasibility, internal consistency and reproducibility of the French version of the Nottingham Health Profile (NHP) completed by adults with hereditary neuromuscular disease.

Design: Cross-sectional study with evaluation at 15 +/- 7 days for NHP test-retest.

Setting: Multidisciplinary rehabilitation consultations in Reims.

[Family caregivers and hereditary muscular disorders: association between burden, quality of life and mental health].

Objective: The analysis of caregiver difficulties seems important to define the life of the patient. The aim of the study was to evaluate the burden of perceived care, health-related quality of life, and mental health of family caregivers who care for patients with hereditary neuromuscular disease.

Materials And Method: Fifty-nine family caregivers were investigated in the course of multidisciplinary consultations in Reims, France, between April 2002 and February 2005.