Navigating the healthcare system with my child with CHD: parental perspectives on developmental follow-up practices.

Background: Parents of children with CHD face several barriers when trying to access the services needed to support their child's development. In fact, current developmental follow-up practices may not identify developmental challenges in a timely manner and important opportunities for interventions may be lost. This study aimed to explore the perspectives of parents of children and adolescents with CHD with respect to developmental follow-up in Canada.

Identifying developmental challenges of youth with congenital heart defects: A patient-oriented perspective.

Background: Youth with congenital heart disease (CHD) are at high risk for a range of developmental impairments that become evident at different times across childhood and adolescence. This study aimed to explore perspectives of youth with CHD with respect to their developmental follow-up across childhood.

Methods: Interpretive description was used as a methodological approach for this qualitative study.