We Have Seen the Mutants-and They Are Us: Gifts and Burdens of a Genetic Diagnosis.

In this essay, I recount and examine my response to a genetic diagnosis of my disabled daughter. My daughter was forty-nine before the diagnosis came. All her disabilities were traceable to a de novo single gene variant on the PURA gene that was discovered only in 2014.

Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care.

In this essay, we suggest practical ways to shift the framing of crisis standards of care toward disability justice. We elaborate on the vision statement provided in the 2010 Institute of Medicine (National Academy of Medicine) "Summary of Guidance for Establishing Crisis Standards of Care for Use in Disaster Situations," which emphasizes fairness; equitable processes; community and provider engagement, education, and communication; and the rule of law. We argue that interpreting these elements through disability justice entails a commitment to both distributive and recognitive justice.

A Demanding Ethics of Care.

The writer responds to the book review essay "Caring for People with Disabilities: An Ethics of Respect," by Kevin Mintz and David Wasserman, in the January-February 2020 issue of the Hastings Center Report, which discusses her book Learning from My Daughter: The Value and Care of Disabled Minds.

How to Argue for Selective Reproductive Procedures.

Many bioethicists try to secure a moral requirement to select against disability, while wishing to avoid denigrating disabled people. Dan Brock's arguments are representative of this attempt. Brock argues that the harm of giving birth to a disabled child when an able child could be had in its stead is a "nonperson-affecting harm.