Publications by authors named "Ermelinda Valente Caldeira"

Background: Family-Centered Care (FCC) is an approach to healthcare planning, delivery and evaluation, based on beneficial partnerships between health professionals, patients and families. FCC may be particularly relevant for families with children with intellectual disability (ID), given their needs of continuum care.

Objective: To identify which components of the FCC are practiced and which health outcomes are considered effective in families with children with ID.

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Article Synopsis
  • Self-care should be viewed in the context of family dynamics rather than just as an individual responsibility, especially important during chronic illness management.
  • The study aims to shift the focus from individual self-care to family self-care, emphasizing the need for a collective care approach based on the family's specific characteristics and requirements.
  • Effective family self-care practices are crucial for improving overall health, as they enable families to better manage diseases and promote wellness together.
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