Family experience of young-onset dementia: the perspectives of spouses and children.

Objectives: Although young-onset dementia (YOD) affects the whole family system, this population is still under-represented in literature, and no progress in care provision has been made. Hence, additional evidence is necessary to understand how family and social relationships are affected by YOD and care challenges, as to provide recommendations for clinical practice and service improvement from a family perspective.

Method: Family carers were recruited via one memory clinic and the local Alzheimer's Associations in Italy.