A survey: Understanding the health and perspectives of people with CF not benefiting from CFTR modulators.

Background: While the advent of cystic fibrosis transmembrane conductance regulator (CFTR) modulator use has improved daily life and long-term prognosis of CF for many with approved CFTR mutations, approximately 10% of people with CF (pwCF) have only symptomatic treatments available.

Methods: Between June 10 and July 1, 2021, Emily's Entourage distributed a 38-question anonymous survey targeted at pwCF not benefitting from approved modulators via social media and email to pwCF and CF advocacy groups in and outside the United States regarding health status, impact of CF, unmet needs, and clinical research interest.

Results: There were 431 survey respondents representing pwCF on five continents.

How U.S. children's hospitals use social media: A mixed methods study.

Background: Social media provide new channels for hospitals to engage with communities, a goal of increasing importance as non-profit hospitals face stricter definitions of community benefit under the Affordable Care Act. We describe the variability in social media presence among US children's hospitals and the distribution of their Facebook content curation.

Methods: Social media data from freestanding children's hospitals were extracted from September-November 2013.

Hidden in plain sight: a crowdsourced public art contest to make automated external defibrillators more visible.

Objectives: We sought to explore the feasibility of using a crowdsourcing study to promote awareness about automated external defibrillators (AEDs) and their locations.

Methods: The Defibrillator Design Challenge was an online initiative that asked the public to create educational designs that would enhance AED visibility, which took place over 8 weeks, from February 6, 2014, to April 6, 2014. Participants were encouraged to vote for AED designs and share designs on social media for points.

Does adolescent media use cause obesity and eating disorders?

In this article we examine media use and its relationship to adolescent overweight/obesity and adolescent eating disorders. We consider the potential mechanisms through which exposure to media during adolescence (both amount of time and choice of content) might exacerbate unhealthy eating and physical activity patterns. We consider strategies that health care providers can use to identify problematic media use and suggestions they might offer to adolescents and their parents for ways to make media a more positive agent in young people's healthy development.