Development and validation of the Youth Acute Pain Functional Ability Questionnaire (YAPFAQ).

Unlabelled: Physical function and functional recovery are important aspects of the acute pain experience in children and adolescents in hospitalized settings. Measures of function related to pediatric acute pain do not exist currently, limiting understanding of recovery in youth undergoing acute and procedural pain. To address this gap, we developed and assessed the clinical utility and preliminary validity of the Youth Acute Pain Functional Ability Questionnaire (YAPFAQ).

Development and validation of the elbow demand rating scale.

Background: Overhead sports place the greatest strain on the elbow of any of the upper extremity joints. Unfortunately, athlete-specific functional outcome tools do not exist for the elbow.

Hypotheses: THE ELBOW DEMAND RATING SCALE (EDS) WILL DEMONSTRATE STRONG RELIABILITY AND VALIDITY PROPERTIES: (1) test-retest reliability with a 2-week EDS administration, (2) internal reliability of the subscales, and (3) construct validity through lower scores for patients with elbow injuries.

Insurance status as a sociodemographic risk factor for functional outcomes and health-related quality of life among youth with sickle cell disease.

Youth with sickle cell disease (SCD) are at risk for functional limitations and poor health-related quality of life (QoL). This study examined sociodemographic factors that may interact with medical complications to reduce functional ability and QoL among youth with SCD. Fifty-three patient/caregiver pairs (children 8 to 18 years; M=12.

Validation of the sickle cell disease pain burden interview-youth.

Unlabelled: The purpose of this study was to develop and validate a brief, clinically relevant, multidimensional interview to assess pain burden among children and adolescents with sickle cell disease (SCD). The Sickle Cell Disease Pain Burden Interview-Youth (SCPBI-Y) was developed using a panel of experts, patients, and caregivers. Validation was undertaken with children and youth with SCD, ages 7 to 21 years (N = 129), recruited from 4 urban children's hospitals.

Measures of infant behavioral and physiological state regulation predict 54-month behavior problems.

This study investigated whether measures of infant temperament, regulatory disorders, and physiological reactivity and concurrent measures of family environment were predictors of child behavior problems at 54 months of age. The sample consisted of 23 children-mother dyads. The sample recruitment strategy emphasized testing both typical and fussy/difficult infants at 9 months of age.

Infant regulatory disorders: temperamental, physiological, and behavioral features.

Objectives: Successful development during the first year of life is dependent on the infant's ability to regulate behavioral and physiological state in response to unpredictable environmental challenges. Although most infants develop skills to self-soothe and regulate behavior, a subset lacks these skills and develops regulatory disorders (RD). The purpose of this study was to evaluate the component features of RD by determining if infants with RD differ from typically developing infants on measures of temperament, respiratory sinus arrhythmia, heart rate, and mother-infant interactions.