Publications by Elma Dema

Publications by authors named "Elma Dema"

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Confronting Craniosynostosis: Maternal Concerns, Challenges, and Coping for their Children.

Ethan D Paliwoda Alejandro Torres Elma Dema Avi A Gajjar Mason J Horne

Cleft Palate Craniofac J

October 2024

Objective: The study objective was to characterize shared online experiences surrounding craniosynostosis.

Methods: Isolated and syndromic craniosynostosis-related consecutive posts (N = 700) made by patients and caregivers were extracted from TikTok and Instagram between 2017-2024. A cross-sectional qualitative analysis following guidelines for practical thematic analysis was performed.

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