Publications by authors named "Elizabeth S Jordan"
Study Objective: To develop a digital platform to conduct family-based, dilated cardiomyopathy (DCM) genetic research.
Design: The DCM Project Portal, a direct-to-participant electronic recruitment, consent, and communication tool, was designed using prior experience with traditional enrollment methods and characteristics and feedback of current participants.
Participants: DCM patients (probands) and their family members enrolled from June 7, 2016 to March 15, 2020 at 25 US advanced heart failure programs.
Study Objective: To develop a digital platform to conduct family-based, dilated cardiomyopathy (DCM) genetic research.
Design: Innovative approaches are needed to achieve large family enrollment targets. The DCM Project Portal, a direct-to-participant electronic recruitment, consent, and communication tool, was designed using prior experience with traditional enrollment methods, characteristics and feedback of current participants, and internet access of the US population.