"It's just what we do": a qualitative study of emergency nurses working with well-established family presence protocol.

Introduction: ENA has supported family presence at the bedside during resuscitation of a loved one since 1993. Limited support from health care institutions has resulted in research that includes few data from hospitals with long-term family presence experience. The study objectives were to (1) describe the benefit and harm of being present during resuscitation to family members, using perceptions of nurses who work in an emergency department with a well-established family presence protocol; and (2) define family presence using perceptions of nurse participants.

Promoting a good death for persons with dementia in nursing facilities: family caregivers' perspectives.

The experience of dying from Alzheimer's disease (AD) in a nursing home setting is a poorly understood phenomenon. Fifty-seven family member caregivers of persons with Alzheimer's disease, who had died as a resident in a national nursing home chain, participated in a structured telephone interview. Despite the belief that their loved one had died with dignity, 16 out of 57 (28%) family member caregivers believed that their loved one had not experienced a good death.