Publications by authors named "Eliane Tatsch Neves"
Objective: To apprehend the family's perception of the care provided by home care services to children and adolescents with special health needs.
Method: Qualitative, exploratory-descriptive study, carried out with 15 family members of children and adolescents with special health needs served by Home Care Services in seven municipalities in Paraíba, in 2021, selected from nine municipalities identified by previous studies. Data were collected using semi-structured interviews carried out remotely through telephone calls.
Objective: To identify the manifestations presented by parents of children and adolescents who require special health attention that can impact their mental health.
Methods: exploratory, qualitative research, based on the concept of vulnerability, with data collection carried out through interviews with 18 parents of children and adolescents with special health care needs, hospitalized in the pediatric ward of a hospital in Paraná, between May/2017 and May/ 2018. Data analyzed by inductive thematic analysis.
Objective: To know the perspective of health professionals working in specialized care regarding the assistance offered to children with Congenital Zika Virus Syndrome in the Health Care Network.
Method: Qualitative study carried out in Campo Grande-MS through semi-structured interviews, between September and October 2020, with 12 professionals working in a reference service for people with physical and intellectual disabilities. Minayo's thematic analysis and the theoretical subsidies of the care model for chronic conditions were used for interpretation.
Objective: To know the vulnerability in adolescents' daily life during the COVID-19 pandemic.
Method: Qualitative research carried out with 25 adolescents from a public school in a municipality in southern Brazil in the second half of 2021 through individual semi-structured interviews. Data were submitted to thematic content analysis and interpreted with the vulnerability theoretical framework.
Objective: To communicate the experience of developing concepts for the construction of a care model through focus groups.
Methods: An experience report on the development of concepts through remote focus groups with members of a research group from a public university in southern Brazil.
Results: Focus groups were developed in which homogeneity and heterogeneity criteria were observed among participants.
Objective: To examine the quality of life of children who depend on health technologies as expressed in their own words.
Methods: A parallel and convergent mixed methods design was employed with 30 aged five to 12 year old children who depend on health technologies. Data collection was done through a characterization form, Pediatric Quality of Life Inventory 4.
Hospital discharge intervention developed in a dialogical way with families to prepare them to care for children with chronic diseases at home: Mixed methods study.
J Child Health Care
September 2024
A convergent parallel mixed methods design with qualitative data collection embedded in a quasi-experimental study was developed to examine the potential of three modalities of preparation for hospital discharge of the families of children with chronic diseases in terms of uncertainty levels and management of the disease at home. Caregivers of these children were divided into three groups: two experimental groups and one control group. Two scales were applied: one measured family management, and the other evaluated uncertainties in relation to the disease.
View Article and Find Full Text PDFArticle Synopsis
- The study estimated the prevalence and profile of children with special healthcare needs (CSHCN) in three municipalities in Brazil from 2015 to 2017, involving 6,853 children aged 0-11.
- Findings revealed that 25.3% of children were classified as CSHCN, with common issues including respiratory conditions, asthma, and allergies, and over half lacking formal diagnoses.
- Risk factors for CSHCN included being of school age, male, having been born prematurely, having a history of hospitalizations, and coming from disadvantaged family backgrounds.
Objective: To analyze the mortality rate of COVID-19 among children and adolescents aged 0 to 14 years.
Methods: Ecological and exploratory study of children's mortality rate by COVID-19 in Brazil, from February to October 2020. The study used the Severe Acute Respiratory Syndrome database to collect the data and made the analysis using descriptive spatial statistics by age and race/color classification.
Objectives: to understand the meaning of continuity of care for children with chronic conditions through transitional care from hospital to home.
Methods: this is a qualitative study, conducted from a Constructivist Grounded Theory perspective. Purposive and theoretical sampling were used to recruit 35 participants, including nurses, professionals from the interprofessional hospital team, and actors responsible for healthcare in the home context.
Objective: To describe the continuity of care for children with special healthcare needs during the COVID-19 pandemic through the perception of their caregivers in the Northeast of Brazil.
Methods: Qualitative descriptive-exploratory research carried out between June and September 2020, in a municipality in the Northeast of Brazil. Eleven caregivers participated through semi-structured interviews conducted at home.
Objective: To identify the factors associated with the development of skin allergies in the first year of life in moderate and late preterm infants.
Method: This is a cross-sectional study with 151 moderate and late preterm infants, born between May 2016 and May 2017. Participants were evaluated in the 3rd, 6th, 9th and 12th months of life, in telephone interviews.
Objective: to analyze the Health Care Network (dis)articulation of late and moderate premature infants in the first year of life.
Method: a qualitative study with semi-structured interview, which addressed the care network constitution in a municipality in southern Brazil. Fifteen mothers of infants participated.
Objective: To know the perception of children and adolescents undergoing cancer treatment about hospitalization.
Methods: Qualitative research conducted with 13 children and adolescents hospitalized for cancer treatment at a referral hospital in southern Brazil. Semi-structured interviews mediated by the drawing technique were conducted from May to November 2018.
Objective: To evaluate evidence from randomised controlled trials and non-randomised controlled trials on the effectiveness of hospital clowns for a range of symptom clusters in children and adolescents admitted to hospital with acute and chronic conditions.
Design: Systematic review of randomised and non-randomised controlled trials.
Data Sources: Medline, ISI of Knowledge, Cochrane Central Register of Controlled Trials, Science Direct, Scopus, American Psychological Association PsycINFO, Cumulative Index to Nursing and Allied Health Literature, and Latin American and Caribbean Health Sciences Literature.
This study aimed to uncover the fertility-related concerns and uncertainties in adolescent and young adult (AYA) childhood cancer survivors. In this qualitative study, participants were recruited from an oncohematology outpatient clinic at a university hospital in Brazil. Twenty-four AYA cancer survivors, aged 18- 24 years (13 men and 11 women), participated in individual semistructured interviews focusing on two parts-sociodemographic and clinical variables and guiding questions that enabled understanding of the concerns and uncertainties regarding the risks of infertility and their impact on relationships and the need for guidance.
View Article and Find Full Text PDFObjectives: to discuss the (in)visibility of children with special healthcare needs and their families in the Primary Health Care scenario.
Methods: experience report about the difficulties faced by researchers from different regions of Brazil to locate children with special healthcare needs in the scope of primary care.
Results: the main reason for these children and their families to be "unknown" and, therefore, not assisted in PHC, is the fact that they are followed-up by institutions/outpatient clinics and specialized and/or public rehabilitation clinics, or even because they have private health insurance.
Objective: To describe the family dynamics and the social support network for families of children with special needs of multiple, complex and continuous care.
Methods: A descriptive study of a qualitative approach, carried out in Maringá - PR, having as theoretical and methodological reference the Calgary Model of Family Assessment (CMFA). Data was collected through semi-structured audio-video interviews, carried out in the homes, together with 11 family caregivers of 13 children.
Purpose: Understanding disease mechanisms inside the body is crucial to engage youth with type 1 diabetes (T1D) in self-care behaviors. This study describes how Instructional Therapeutic Play (ITP) group sessions held by nurses in a Brazilian camp can enhance youth's understanding about T1D.
Design And Methods: Youth with T1D participated in video recorded ITP group sessions guided by the Sensitive Creative Method.
Objective: To know how children with special health needs access the health care network.
Method: This is a qualitative research of descriptive-exploratory type, developed using semi-structured interviews mediated by the Talking Map design. Participants were 19 family caregivers of these children in two Brazilian municipalities.
Objective: To describe the social network of adolescents who need special health care.
Method: A qualitative, descriptive and exploratory study conducted between 2016 and 2017 in the pediatric outpatient clinic of a teaching hospital in southern Brazil. Thirty-five semi-structured interviews were conducted with adolescents between 12 and 18 years of age, followed by the construction of genograms and ecomaps.
Introduction: Clown intervention may playing an important complementary role in paediatric care and recovery. However, data on its utility for symptom cluster management of hospitalised children and adolescents in acute and chronic disorders are yet to be critically evaluated. As clinicians strive to minimise the psychological burden during hospitalisation, it is important that they are aware of the scientific evidences available regarding clown intervention for symptom management.
View Article and Find Full Text PDFObjective: To identify the factors associated with family risk of children with special health care needs.
Methods: Bicentric study, with a cross-sectional design and a quantitative approach, with family caregivers of children with special health care needs. Instruments were applied to obtain a sociodemographic characterization, and identify and classify the family risk.
Background: Pediatric nursing care involves many significant ethical challenges. Although nurses are broadly recognized as professionals with relevant knowledge about children and families, little is known about how nurses experience ethical concerns in their everyday practice.
Objective: The objective of this study was to better understand the moral experiences and related moral distress experiences of nurses working in pediatric settings in Brazil.
Objective: to report the experience of applying the focus group technique for production of data in qualitative research.
Method: four group sessions were held from May to June 2015, with the participation of professionals from the public sector of PHC and from specialized service.
Results: the way focus group was developed is described in steps: planning, recruitment, ambience, group sessions, and evaluation.