Publications by authors named "Elaine Mateus"
Article Synopsis
- "Walking the Talk for Dementia" is an immersive initiative designed to empower individuals affected by dementia and improve overall understanding of the condition through a collective experience.
- The program included a 4-day, 40 km walk with 300 participants from diverse backgrounds, followed by a symposium aimed at fostering collaborative discussions and breaking down traditional power structures in dementia care.
- This innovative approach highlights the importance of combining physical activities with knowledge sharing to enhance empathy, reduce stigma, and improve dementia care and research on a larger scale.
This study aimed to understand stigma in relation to people living with dementia in Sao Paulo, Brazil. Critical Narrative Inquiry methodology was used. Semi-structured interviews were conducted between January and March 2020 with six people living with dementia and 15 family carers.
View Article and Find Full Text PDFSTRiDE was an ambitious four-year project in seven countries aiming to build capacity around generating and using research to support the development of policies to improve quality of life of people with dementia and their carers. The project's innovative approach combined rigorous academic research and hands-on civil society advocacy. This paper explores the project's unique strategy for policy change and compiles case-studies from several of the STRiDE countries.
View Article and Find Full Text PDFBackground And Objectives: Despite the rapid increase in the number of people living with dementia in Brazil, dementia care is limited. This study describes how people living with dementia and their carers access care, treatment, and support, and identifies what characteristics are likely to enable or prevent access.
Research Design And Methods: We created 10 vignettes to illustrate fictitious but realistic scenarios involving people living with dementia in Brazil.
Background: While the majority of patients with Alzheimer's disease resides in low and middle-income countries, little is known of their preparedness for emerging disease-modifying treatments. We analyze the preparedness of Brazil, one of the most populous middle-income countries, from a capacity and institutional preparedness perspective.
Methods: Desk research and 12 interviews for background and capacity data.
Introduction: Stigma and discrimination among healthcare workers can hinder diagnosis and the provision of appropriate care in dementia. This study is aimed at developing, delivering and evaluating the feasibility of a group antistigma intervention to improve knowledge, attitudes and behaviours in relation to people living with dementia among community health workers (CHWs).
Methods And Analysis: This will be a randomised controlled feasibility trial conducted with 150 CHWs from 14 primary care units (PCUs) in São Paulo, Brazil.