Quality of Life Assessments in Individuals With Young-Onset Dementia and Their Caregivers.

Background: Quality of life (QoL) has seldom been investigated or explicitly measured in young-onset dementia (YoD). The aims of this study were (1) to investigate and compare QoL self- and proxy reports in a sample of YoD patients and caregivers using different conceptual assessments of QoL and (2) to examine the relationship between caregiver QoL and both burden and mental health.

Methods: There were 52 participants (26 YoD patient-caregiver dyads).