Publications by authors named "Edward Wamala"

Article Synopsis
  • Community engagement (CE) is crucial for maintaining ethical integrity in genetics and genomics research (GGR) but lacks sufficient guidelines, especially in Uganda.
  • The study analyzes the experiences of GGR researchers, community members, and Research Ethics Committee (REC) members in Uganda to develop effective and ethical CE practices.
  • Findings reveal that while CE is often initiated during the sample collection stage, there is a need for earlier involvement, increased budgeting for CE, and inclusion of genetic counselors to address social issues raised by GGR.
View Article and Find Full Text PDF

To attain effective community engagement (CE) for genetics and genomics research (GGR) is a challenge. This study aimed to analyzed participants' perspectives on how to attain effective CE for GGR in Uganda. A cross-sectional qualitative study involving in-depth interviews with twenty research ethics committee members and three national research regulators was conducted.

View Article and Find Full Text PDF

Background: Generally, there is unanimity about the value of community engagement in health-related research. There is also a growing tendency to view genetics and genomics research (GGR) as a special category of research, the conduct of which including community engagement (CE) as needing additional caution. One of the motivations of this study was to establish how differently if at all, we should think about CE in GGR.

View Article and Find Full Text PDF

Background: In developing countries like Uganda, the human right to adequate food (RtAF) is inextricably linked to access to land for households to feed themselves directly through production or means for its procurement. Whether RtAF is enjoyed among Ugandan land evictees, is unknown. We therefore explored this among land evictees (rights-holders) in Wakiso and Mpigi districts in rural Central Uganda.

View Article and Find Full Text PDF