Publications by authors named "E Mioshi"

Article Synopsis
  • Dementia affects not just the person who has it but also their spouse, changing their relationship in many ways.
  • The study looked at how carers, mainly women, adjust to their new roles and the challenges they face, such as losing the special connection with their partner.
  • To improve their relationship, the study suggests using methods like sharing memories together, learning better ways to communicate, and practicing self-compassion to help cope with these feelings.
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Introduction: People with dementia develop progressive difficulties conducting basic activities of daily living, often requiring considerable assistance from caregivers. Many people with dementia, particularly in the advanced stages, can refuse assistance with care leading to difficult interactions. The ways in which refusals of care can be best reduced are unknown.

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Background: To explore carers' experiences of behavioural symptoms in Motor Neurone Disease (MND), before and after using the MiNDToolkit, a novel internet-based psychoeducational intervention to support management of behavioural symptoms (BehSymp) in MND. The study also investigated carers' views and acceptability of MiNDToolkit.

Methods: A qualitative process evaluation of carers engagement with, and acceptability of, the MiNDToolkit conducted using semi-structured interviews with carers (n = 11).

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Purpose Of Review: Alongside motor and cognitive symptoms, amyotrophic lateral sclerosis (ALS) and ALS with frontotemporal dementia (ALSFTD) present with behavioural symptoms, which can be challenging for all affected by the disease. A scoping review of studies published between 2011 and 2024 was conducted to present the breadth of behavioural symptoms in ALS and ALSFTD, explore how they are described and assessed, and identify patterns in the literature.

Findings: This scoping review identified 3939 articles, with 111/3939 meeting eligibility criteria.

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