Publications by authors named "E K Masel"

Objective: The aim of this study was to create a patient-centered comic on palliative care with and for patients admitted to a palliative care unit and to examine their experiences of graphic educational material.

Methods: This study employed a qualitative methodology using semi-structured interviews with advanced cancer patients admitted to the palliative care unit of the Medical University of Vienna. The data were analyzed using thematic analysis with the assistance of the MAXQDA software.

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Article Synopsis
  • Multiple myeloma (MM) presents complex symptoms that require comprehensive management, and palliative care (PC) plays a crucial role in meeting patients' physical, psychosocial, and spiritual needs, though it is underutilized in MM treatment.
  • A study of 22 MM patients in a palliative care unit found that the most common admission reasons were nutritional issues (82%), fatigue (77%), and pain (68%), with a significant portion dying during their stay.
  • Results showed that while hospital stays varied, there was a notable reduction in symptom severity, highlighting the effectiveness of PC interventions in improving patients' quality of life through a multidimensional approach.
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While mortality rates from advanced chronic liver disease (ACLD) are rapidly increasing, patients with an advanced disease stage have a comparable or even higher symptom burden than those with other life-limiting diseases. Although evidence is limited there is increasing recognition of the need to improve care for patients with ACLD; however, there are many limiting factors to providing good palliative care for these patients, including unpredictable disease progression, the misconception of palliative care and end of life care as being equivalent, a lack of confidence in prescribing medication and a lack of time and resources. Health professionals working with these patients need to develop the skills to ensure effective palliative care, while referral to specialized palliative care centers should be reserved for patients with complex needs.

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Purpose: A large volume of literature suggests that timely integration of palliative care (PC) enhances the well-being, quality of life and satisfaction of patients and their families. It may also positively impact clinical outcomes and healthcare costs throughout the disease trajectory. Therefore, reviewing clinical practice to reflect real-life situations regarding timely PC integration is essential.

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