Publications by authors named "E A van de Graaf"

Massively Parallel Sequencing (MPS) has gained interest in the forensic community over the past decade. Most of the published MPS methods focus on specialty applications intended for use in a limited number of samples with protocols that are relatively laborious. Recent developments using Reverse-Complement PCR enable an efficient MPS protocol suited for routine analysis of high numbers of samples.

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Objectives: In palliative care, it is important for family caregivers to spend time with and care for the patient, and to receive (in)formal support. These elements were compromised during the Covid-19-pandemic. This study investigates what family caregivers of non-Covid-19-patients in the palliative phase shared online during the first wave of the pandemic, and what their communicative intentions were with posting online.

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Objective: Care transitions are common in the last months of life and continuity of information and care is at risk when unplanned admissions are necessary. To mitigate the risk of inappropriate care, a transmural care pathway was developed, that includes active involvement of a patient's general practitioner during hospitalization.

Design: Multiple-method feasibility study in an academic hospital and affiliated general practices from July to December 2022.

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Background: The Utrecht Symptom Diary-4 Dimensional (USD-4D), an adaptation of the Edmonton Symptom Assessment System, supports healthcare providers (HCPs) in identifying, monitoring, and exploring multidimensional symptoms and needs of patients in the palliative phase. For the USD-4D to be optimally implemented in clinical palliative care, it is essential to know and understand the needs of HCPs when using it.

Objective: To identify and interpret the needs of HCPs when using the USD-4D in clinical palliative care, operationalized as perceived facilitators and barriers.

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Article Synopsis
  • The study focuses on the importance of Advance Care Planning (ACP) for patients with Idiopathic Pulmonary Fibrosis (IPF) and Progressive Pulmonary Fibrosis (PPF), recommending a collaborative approach with patients and families to improve care.
  • A retrospective audit of medical charts from 60 patients who died between December 2017 and December 2020 revealed that while 95% had some documented ACP elements, none contained all fourteen identified key elements.
  • Findings suggest that ACP discussions in the care of IPF/PPF patients are often insufficient and superficial, highlighting the need for better implementation of structured ACP conversations and documentation to truly understand patient preferences.
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