The Lived Experience of African-American Informal Caregivers of Family Members with Alzheimer's Disease and Related Dementias.

The purpose of this qualitative study was to describe the lived experience of African-American informal caregivers of family members with Alzheimer's Disease and Related Dementias (ADRD) in a home environment. Using a qualitative, phenomenological approach, a purposive sample of 16 African-American informal caregivers completed an in-depth interview that lasted from 30 to 60 minutes. Four themes emerged: (a) a sense of obligation, (b) an arduous journey, (c) sentinel events, and (d) faith in God.

Intra-family stressors among adult siblings sharing caregiving for parents.

Aim: The aim of this study was to describe a Neuman Systems Model-guided study of perceptions of family stressors experienced by adult siblings who share caregiving for their parents and the influence of these stressors on adult siblings' relationships.

Background: The task of providing informal care for disabled parents is often shared by adult siblings. Family stressors experienced as part of caregiving may affect the sibling relationship.