Publications by authors named "Devi Vijay"
Where are the values in evaluating palliative care? Learning from community-based palliative care provision.
Palliat Care Soc Pract
October 2024
Article Synopsis
- The World Health Organization's 2018 Astana Declaration emphasizes the critical role of primary healthcare in achieving universal health coverage and promoting community palliative care, though evaluating these programs presents challenges.
- This study focuses on the evaluation of a community-based palliative care approach in Kerala, India, using qualitative methods including interviews and observational analysis.
- Key findings highlight the importance of values such as heterogeneity, voice, and decentralization in the care process, and suggest that effective evaluations must consider both direct and indirect outcomes from the care provided.
We explore the temporalities that shape and alleviate serious health-related suffering among those with chronic and terminal conditions in Kerala, India. Drawing on ethnographic fieldwork between 2009 and 2019, we examine the entanglements between waiting for care within dominant institutions and the community organizing that palliates this waiting. Specifically, people navigate multiple medical institutions, experience loneliness and abandonment, loss of autonomy, and delays and denials of recognition as they wait for care.
View Article and Find Full Text PDF: The community form of palliative care first constructed in Kerala, India has gained recognition worldwide. Although it is the subject of important claims about its replicability elsewhere, little effort has gone into studying how this might occur. Drawing on translation studies, we attend to under-examined aspects of the transfer of a community palliative care intervention into a new geographic and institutional context.
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