The need to consider 'temporality' in person-centred care of people with motor neurone disease.

Aims And Objectives: The overall aim of this paper is to provide practical insight into the way that professionals caring for a person with motor neurone disease (MND) can recognise, respect and respond to that person's temporality; that is, the person that they have been, that they are now and that they will be in the future.

Background: MND is an umbrella term for a group of four rare, devastating neurodegenerative terminal diseases of middle/later life. Previously, we have acknowledged the importance of different time periods in the trajectory of MND as an illness, for example, during the diagnosis stage through to end of life and decision-making at that time.

Making her end of life her own: further reflections on supporting a loved one with motor neurone disease.

Background: People can live for many months without knowing why their body is failing prematurely before being diagnosed with motor neurone disease (MND); a terminal neurodegenerative disease which can be experienced as 'devastating' for the person and their family.

Aim: This study aimed to explore the meaning of supporting a loved one with MND to die.

Methods: This study uses reflection and autobiographical story to connect with broader cultural, political and social meaning and understandings of dying.

The meaning of living with uncertainty for people with motor neurone disease.

Aims And Objectives: To explore the meaning of living with uncertainty for people diagnosed with motor neurone disease (MND).

Background: Motor neurone disease is a progressive neurodegenerative condition resulting in multiple needs, arising from the complex nature of the disease trajectory. People with MND are often required to make decisions for symptom management and end-of-life care.

Lived-through past, experienced present, anticipated future: Understanding "existential loss" in the context of life-limiting illness.

Objective: Motor Neurone Disease (MND) is a rare, devastating neurodegenerative disease of middle/later life, usually presenting in the sixth and seventh decades (McDermot & Shaw, 2008). People have to wait many months to receive a diagnosis of MND (Donaghy et al., 2008), and during this period they have already experienced the degenerative nature that characterizes MND (Bolmsjö, 2001).