Publications by authors named "Debra Dulake"
Article Synopsis
- Involving research users in priority setting is crucial for patient-centered outcomes and maximizing research impact.
- The Musculoskeletal Disorders Research Advisory Group used the CHNRI method, which consists of four stages and two surveys, to identify and prioritize research uncertainties related to musculoskeletal disorders.
- Key research priorities identified include developing new treatments, improving treatment targeting and early diagnosis, preventing issues, and better managing pain, highlighting a need for further understanding of underlying mechanisms.
Article Synopsis
- The UK's "Getting It Right First Time" program emphasizes that fibromyalgia management should primarily occur within primary care, but effective health system organization remains uncertain.
- Two online surveys revealed that NHS services for fibromyalgia are inconsistent, with only a few professionals reporting structured care pathways, while diagnosis varies greatly among healthcare providers.
- Major issues identified include a perceived lack of available services, and qualitative themes emerged, highlighting challenges faced by patients, such as feeling labeled, burdened, and deprioritized in the healthcare system.
Chronic pain is the leading cause of life years lived with disability worldwide. The aetiology of most chronic pain conditions has remained poorly understood and there is a dearth of effective therapies. The WHO ICD-11 has categorised unexplained chronic pain states as 'chronic primary pains' (CPP), which are further defined by their association with significant distress and/or dysfunction.
View Article and Find Full Text PDFArticle Synopsis
- Fibromyalgia syndrome (FMS) is a prevalent chronic pain condition, and recent research highlights the potential involvement of serum immunoglobulin Gs (IgGs), leading to challenges in management due to a lack of clear mechanisms.
- An international expert group conducted a multi-phase research prioritization exercise that resulted in 39 interim recommendations for future studies on FMS, emphasizing the importance of autoantibody investigation, trial design, and therapeutic interventions.
- The process aimed to direct research towards useful applications for patients, ensuring that the findings are relevant for patients, healthcare professionals, and funding organizations interested in FMS.