Parent Views on Parent and Child-reported Outcomes in Pediatric Advanced Cancer: A Qualitative Study.

Background: Research on concurrent parent and patient-reported outcomes has primarily focused on reaching agreement. However, little is known about how to interpret and address discrepancies, which are not uncommon, between both viewpoints.

Objectives: To explore parents' perspectives on reporting about child symptoms and quality of life (QoL) concurrently with their child in the context of pediatric advanced cancer.

Family characteristics and childcare patterns associated with early social functioning in cancer-bereaved parents.

Background: Bereaved parents experience life-long grief after the death of their child from cancer. Parents who can integrate their grief and maintain their social functioning early in bereavement, even in the setting of concurrent psychosocial distress, have improved outcomes. Identifying the factors associated with bereaved parents' early social functioning can guide future supportive interventions.

Adolescents and young adults with cancer conversations following participation in an advance care planning video pilot.

Purpose: Advance care planning (ACP) discussions can help adolescents and young adults (AYAs) communicate their preferences to their caregivers and clinical team, yet little is known about willingness to hold conversations, content, and evolution of care preferences. We aimed to assess change in care preferences and reasons for such changes over time and examine the reasons for engaging or not engaging in ACP discussions and content of these discussions among AYAs and their caregivers.

Methods: We conducted a pilot randomized controlled trial of a novel video-based ACP tool among AYA patients aged 18-39 with advanced cancer and their caregivers.

A Pilot Randomized Trial of an Advance Care Planning Video Decision Support Tool for Adolescents and Young Adults With Advanced Cancer.

Background: Adolescents and young adults (AYAs) with advanced cancer often receive intensive end-of-life care, yet it is unclear if this is goal-concordant. Advance care planning (ACP) video tools may promote identification and communication of AYA preferences.

Patients And Methods: We conducted a dual-site, 1:1 pilot randomized controlled trial of a novel video-based ACP tool in 50 dyads of AYA patients aged 18 to 39 years with advanced cancer and their caregivers.

Mixed-methods analysis of decisional regret in parents following a child's death from cancer.

Background And Objectives: Decisional regret is common in bereaved parents. We aimed to identify factors associated with and to explain patterns of parental decisional regret.

Methods: We used a convergent mixed-methods design including quantitative items and free-text responses from a survey of parents 6-24 months from their child's death from cancer.

Patient-Reported Outcome Benefits for Children with Advanced Cancer and Parents: A Qualitative Study.

Context: Electronic patient-reported outcomes (e-PROs) in pediatric oncology may be useful to track patients' symptoms and quality of life (QoL). However, implementation in the clinical setting is limited and few studies have examined child and parent perspectives on e-PRO usage.

Objectives: This brief report aims to explore child and parent perspectives on the benefits of using e-PROs to routinely report on symptoms and QoL.

Early Bereavement Psychosocial Outcomes in Parents of Children Who Died of Cancer With a Focus on Social Functioning.

Purpose: The early grief experience of parents of children who died of cancer remains understudied. Understanding psychosocial symptomology and functioning of parents early in their bereavement is essential to developing supportive interventions aimed at offsetting poor mental and physical outcomes.

Methods: Parents of children from two centers who died of cancer 6 to 24 months before were mailed a survey that included validated tools and additional Likert scale-based questions.

"It's Hard Not to Have Regrets:" Qualitative Analysis of Decisional Regret in Bereaved Parents.

Context: Bereaved parents may have heightened risk for decisional regret; however, little is known about regret early in bereavement.

Objectives: We characterized decisional regrets endorsed by parents of children who died from cancer within the first two years of their bereavement.

Methods: We analyzed responses from a cross-sectional, dual site study of parents six to 24 months from their child's death.

US Ventilator Allocation and Patient Triage Policies in Anticipation of the COVID-19 Surge.

Before the predicted March 2020 surge of COVID-19, US healthcare organizations were charged with developing resource allocation policies. We assessed policy preparedness and substantive triage criteria within existing policies using a cross-sectional survey distributed to public health personnel and healthcare providers between March 23 and April 23, 2020. Personnel and providers from 68 organizations from 34 US states responded.