Publications by authors named "Deanne Clare"

Article Synopsis
  • A TMJ Patient-Led RoundTable initiative was formed due to inconsistent reports about TMJ implant outcomes, leading to the need for a Coordinated Registry Network (CRN) to gather and analyze data on temporomandibular disorders (TMD) and their treatment.
  • The study aimed to establish a core minimum dataset for TMD patients, using a Delphi survey to collect and refine data elements based on input from 92 participants, retaining only those with over 75% consensus.
  • Ultimately, 397 data elements were selected for inclusion, with a focus on integrating these into the HIVE web application and CHIOS™ blockchain platform to enhance data reliability and patient consent tracking.
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Background: Many patients with temporomandibular disorders (TMD) find it difficult to undergo dental care due to challenges caused by their condition, previous temporomandibular joint surgery or invasive dental procedures, and the impact of comorbid conditions. Managing routine dental care for some patients with TMD can be seen as challenging by some dental practitioners.

Objective: The objective of this study was to work with patients experiencing TMD and clinicians to co-produce recommendations aimed at helping general dentists to provide routine dental care for patients with TMD.

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Background: Understanding symptoms of temporomandibular joint disorders (TMDs) can help doctors and patients document, monitor, and manage the disease and help researchers evaluate interventions. Patients with TMDs experience symptoms ranging from mild to severe, primarily in the head and neck region. This study describes findings from formative patient focus groups to capture, categorize, and prioritize symptoms of TMDs towards the development of a patient-reported outcome measure (PROM).

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