Publications by authors named "David Abeln"
Article Synopsis
- - The study highlights significant dissatisfaction among PKU patients and professionals with current home sampling methods, particularly regarding sample collection frequency and lengthy turn-around times.
- - A survey of 210 parents, 156 patients, and 95 professionals revealed that many patients take fewer samples than recommended, and there's a general sentiment of wanting better testing methods.
- - There is strong interest in point-of-care testing (POCT), with 97% of parents willing to use a device, though concerns regarding cost, accuracy, and other factors were raised.
Objectives: Dietary treatment in phenylketonuria (PKU) is known to cause eating problems, but knowledge of both prevalence and magnitude, especially for social restrictions, is scarce. Our aim was to evaluate the social restrictions and eating problems that children with PKU and their caregivers experience with dietary treatment.
Methods: A web-based questionnaire, based on the Behavioral Pediatrics Feeding Assessment Scale with additional PKU-specific questions, was developed in close collaboration with and distributed by the Dutch PKU Association, which sent an e-mail to its members containing a link to the questionnaire.
Phenylketonuria and tyrosinemia type 1 are treated with dietary phenylalanine (Phe) restriction. Aspartame is a Phe-containing synthetic sweetener used in many products, including many 'regular' soft drinks. Its amount is (often) not declared; therefore, patients are advised not to consume aspartame-containing foods.
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