Publications by authors named "Danial Shadi"
Background: Cystic fibrosis (CF) in children requires complex and time-consuming daily care, presenting significant challenges for families and caregivers. Family caregivers caring for children with CF report diverse and complex needs.
Objective: This review aimed to identify the supportive care needs of family caregivers of children with CF.
Article Synopsis
- Families with children who have cystic fibrosis in Iran struggle with inadequate healthcare support during diagnosis, hospitalization, and post-care, highlighting the need for improved assistance.
- The study will use a mixed-methods approach, involving qualitative interviews and a scoping review to identify family needs, followed by the design and validation of a support program.
- Approved by the ethics committee, the research aims to publish its findings in a peer-reviewed journal while ensuring informed consent from participants.