Publications by authors named "Dan E Ford"
Background: Although research participation is essential for clinical investigation, few quantitative outcome measures exist to assess participants' experiences. To address this, we developed and deployed a survey at 15 NIH-supported clinical research centers to assess participant-centered outcomes; we report responses from 4,961 participants.
Methods: Survey questions addressed core aspects of the research participants' experience, including their overall rating, motivation, trust, and informed consent.