Correlates of psychological distress among mothers of children and adolescents with hemophilia and HIV infection.

Evaluated the correlates of mood state (psychological distress) in a multisite study of two groups: (a) mothers of HIV-positive children and adolescents with hemophilia (n = 91), and (b) mothers of HIV-negative children and adolescents with hemophilia (n = 92). Socioeconomic status, quality of family relationship support, and frequency of negative life events accounted for significant variance in Total Mood Disturbance (psychological distress) as measured by the Profile of Mood States in the overall sample. Severity of hemophilia was unrelated to distress.

Impact of the repressive personality style on the measurement of psychological distress in children and adolescents with chronic illness: an example from hemophilia.

Described the impact of the repressive personality style on the measurement of psychological distress among children and adolescents with hemophilia. Two groups were compared on parent and self-report measures of anxiety and depression: a nondefensive group (n = 34) with low distress; and a highly defensive group (n = 26) who were identified as having a repressive personality style and who also reported low distress. Consistent with hypotheses, highly defensive children reported comparable levels of anxiety and lower levels of depression than nondefensive children.

Psychological response to HIV positivity in hemophilia.

Objective: To compare the psychological and family adaptation of children and adolescents with hemophilia who were seropositive for human immunodeficiency virus type 1 (HIV-1) with an HIV-negative group of comparable age, demographic characteristics, and disease severity in a multi-site study.

Design: Cross-sectional, controlled study.

Setting: Thirty-three hemophilia treatment centers throughout the United States.