Publications by Cynthia Stapornwongkul

Publications by authors named "Cynthia Stapornwongkul"

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Research on Rare Diseases in Germany - The GAIN Registry: a registry for individuals with congenital multi-organ autoimmune diseases.

Cynthia Stapornwongkul Alexandra Nieters Paulina Staus Stephan Rusch Anita Delor

J Health Monit

December 2023

Background: Patient registries are an important tool for networking medical caregivers and research, especially in the field of rare diseases. Individuals afflicted by multi-organ autoimmune diseases typically suffer from inflammation of multiple organs.

Project: GAIN (German genetic multi-organ Auto-Immunity Network) is the German network for research and therapy optimisation for individuals with congenital multi-organ autoimmune diseases.

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- Cynthia Stapornwongkul's recent research focuses on enhancing the understanding and management of rare congenital multi-organ autoimmune diseases, providing vital insights into patient care and treatment strategies in Germany.
- The GAIN Registry, a key project highlighted in her work, aims to establish a comprehensive patient registry that links medical caregivers and researchers, fostering collaboration and data sharing in the rare disease community.
- The findings from her 2023 study underline the significance of patient registries in advancing research and therapy optimization for individuals suffering from these complex and often debilitating conditions.

Publications by authors named "Cynthia Stapornwongkul"

Research on Rare Diseases in Germany - The GAIN Registry: a registry for individuals with congenital multi-organ autoimmune diseases.

Synopsis of recent research by authors named "Cynthia Stapornwongkul"