Caregiver Perspectives on the Benefits, Burdens, and Moral Distress of Participation in Cancer Clinical Trials.

Caregivers often face critical decisions, burdens, and perceived benefits related to a loved one participating in cancer clinical trial (CCTs). The purpose of this analysis was to better understand caregivers' perceptions on the benefits and burdens of participation in cancer clinical trials. Using a qualitative descriptive design, interviews with 20 caregivers of patient-participants from a larger parent study were conducted.

Caregivers' perspectives on the contextual influences within family management for ethnically diverse children with ADHD.

Purpose: Attention deficit hyperactivity disorder (ADHD) is a common neurodevelopmental disorder affecting over 9% of children in the United States. Family caregivers are often responsible for the management of their child's ADHD. Contextual influences, such as healthcare providers, systems, and resources, are factors contributing to the ease or difficulty of family management.

Family Management in Childhood Attention Deficit Hyperactivity Disorder: A Qualitative Inquiry.

Purpose: The purpose of this study was to better understand how caregivers and families manage childhood Attention Deficit Hyperactivity Disorder (ADHD) in their everyday lives and explore family management factors most relevant to child outcomes, including the child's daily life, condition management effort, condition management ability, and view of condition impact.

Design And Methods: Cross-sectional data from caregivers (N = 50) of children with ADHD (ages 5-12 years) within a large northeastern city were collected, analyzed, and interpreted using directed content analysis and qualitative methods. This inquiry was part of a larger mixed method study which examined the impact of family management on childhood ADHD and how family management factors were related to children's level of impairment across a spectrum of child functioning.

Parent and Family Processes Related to ADHD Management in Ethnically Diverse Youth.

Background: Previous research has shown major disparities in attention deficit hyperactivity disorder (ADHD) for diverse youth across America. We do not fully understand, however, how parent and family processes are related to the identification, care-seeking approaches, treatment preferences, and engagement with care systems and services for youth with ADHD.

Objectives: The present study aimed to explore parent and family processes related to the management of ADHD in racially and ethnically diverse youth.

The role of family phenomena in children and adolescents with attention deficit hyperactivity disorder.

Topic: Previous research suggests that families are integral to the understanding of children and adolescents with attention deficit hyperactivity disorder (ADHD).

Purpose: The purpose of this article is to identify family phenomena related to children and adolescents with ADHD and highlight research findings that intersect family phenomena with the care and treatment of ADHD in youth.

Sources: A literature review was conducted at the University of Pennsylvania in spring of 2014 using an online library system.