Post-intensive care syndrome (PICS) impacts most pediatric critical care survivors. PICS spans physical, cognitive, emotional, and social health domains and is increasingly recognized in survivorship literature. Children pose unique challenges in identifying and treating PICS given the inherent population heterogeneity in pediatric samples with biological differences across ages and neurodevelopmental stages, unique disease pathophysiology, strong environmental influences on disease and recovery, and lack of standardized measurements to identify morbidities or track response to intervention.
View Article and Find Full Text PDFBackground: Survival of children with complex medical conditions has increased over time. Around 5% of children admitted to a neonatal unit (NNU) later have an admission to a paediatric intensive care unit (PICU) in early life. No work to date has explored the needs of parents who have a child admitted to both of these healthcare settings.
View Article and Find Full Text PDFPediatr Crit Care Med
October 2023
Introduction: As paediatric intensive care unit (PICU) mortality declines, there is growing recognition of the morbidity experienced by children surviving critical illness and their families. A comprehensive understanding of the adverse physical, cognitive, emotional and social sequelae common to PICU survivors is limited, however, and the trajectory of recovery and risk factors for morbidity remain unknown.
Methods And Analysis: The Post-Intensive Care Syndrome paediatrics Longitudinal Cohort Study will evaluate child and family outcomes over 2 years following PICU discharge and identify child and clinical factors associated with impaired outcomes.
Background: New research in the field of psychological trauma has emphasized (a) the heterogeneity of psychological reactions after traumatic events and (b) the existence of distinct symptom trajectories.
Aims: In this study, existing data on post-traumatic stress disorder (PTSD) symptoms in 66 parent-child dyads were re-examined in the light of this literature in order to establish whether a similar pattern of symptom trajectories also applies to this population.
Study Design: A prospective observational cohort study.
Pediatr Crit Care Med
December 2023
Objectives: The main aim of this study was to illustrate the type of mental health provision possible on PICU by describing the nature of referrals of child patients and their parents to an embedded psychologist over a 20-year period, adding to the literature on intervention and service development.
Design: Retrospective evaluation of anonymized departmental database.
Setting: Twelve-bed PICU at a teaching hospital in a major urban center.
Objective: To understand the context and professional perspectives of delivering early rehabilitation and mobilisation (ERM) within UK paediatric intensive care units (PICUs).
Design: A web-based survey administered from May 2019 to August 2019.
Setting: UK PICUs.
Objectives: To identify the risks of developing post-traumatic stress disorder (PTSD) and/or depression in parents following their child's PICU admission using a brief screening instrument and to examine the associations with these risks.
Design: A cross-sectional parental survey.
Setting: A general 13-bed PICU at a large teaching hospital.
Although bereaved parents suffer greatly, some may experience positive change referred to as post-traumatic growth. Explore the extent to which parents perceive post-traumatic growth after their child's death in a pediatric intensive care unit (PICU), and associated factors. Longitudinal parent survey conducted 6 and 13 months after a child's death.
View Article and Find Full Text PDFPediatr Crit Care Med
February 2021
Intensive Crit Care Nurs
February 2021
J Pediatr Intensive Care
September 2020
Semistructured interviews were conducted with patients and family members ( = 18) postdischarge to examine how they managed their recovery in the year following a child's intensive care unit admission. Data were analyzed using the grounded theory. Participants described an ongoing need to develop and adapt their narratives about admission and recovery.
View Article and Find Full Text PDFIntroduction: Annually in the UK, 20 000 children become very ill or injured and need specialist care within a paediatric intensive care unit (PICU). Most children survive. However, some children and their families may experience problems after they have left the PICU including physical, functional and/or emotional problems.
View Article and Find Full Text PDF