Pediatric to Adult Transition in Sickle Cell Disease: Survey Results from Young Adult Patients.

Background/aims: We surveyed sickle cell disease (SCD) patients who transitioned from pediatric care at Texas Children's Hematology Center (TCHC) to adult care to determine the characteristics of patients with an adult SCD provider, continuation rates of pre-transition therapies, and patient perceptions of the transition process.

Methods: A cross-sectional study was conducted by telephone survey of 44 young adults with SCD, aged 19-29 years, who transitioned from TCHC to adult care within the last 15 years.

Results: Findings of the 23-item questionnaire revealed that transitioned patients with current adult providers (68.