Research priorities of patients with neuromuscular disease.

Purpose: This paper describes a study in which patients with neuromuscular disease (NMD) were engaged to list top-priorities for scientific research in order to complement the researchers' agenda.

Method: A dialogic model for research agenda setting was used. Interviews, focus groups and expert meetings with patients were held to identify research topics.

Collaboration and co-ownership in research: dynamics and dialogues between patient research partners and professional researchers in a research team.

Background:   Different strategies by which patients can be involved in research include consultation, control and collaboration. This article focuses on collaboration within research teams and considers this with reference to a research project about setting a social-scientific agenda for health research from the perspectives of patients with a chronic kidney disease (CKD).

Objective:   To examine the dynamics and dialogues in a collaboration between patient research partners and professional researchers.

Patients as partners in responsive research: methodological notions for collaborations in mixed research teams.

Patients are increasingly actively involved in research. We depart from an approach that understands patient participation as dialogue. This idea is grounded in hermeneutic philosophy and responsive research.