Decision-Making Around COVID-19 Public Health Measures and Implications for Self-Care Activities: Experiences of Persons With Rheumatoid Arthritis.

Objective: We aimed to advance understanding of how persons with rheumatoid arthritis (RA) experience decision-making about adopting public health measures during the COVID-19 pandemic.

Methods: Persons living with RA partnered throughout this nested qualitative study. One-to-one semistructured telephone interviews were conducted with participants with RA between December 2020 and December 2021.

Canadians' views on the use of routinely collected data in health research: a patient-oriented cross-sectional survey.

Background: Little is known about Canadians' knowledge of and level of support for using administrative and other large, routinely collected data for health research, despite the benefits of this type of research to patients, health care systems and society. We sought to benchmark the views of Canadian adults on this topic.

Methods: Researchers and patient leaders of 3 joint and skin disease organizations codeveloped a cross-sectional online survey that was conducted between January and August 2017.

Patient education and self-management of musculoskeletal diseases.

The research literature reports that patient (consumer) education and self-management programs and practices help people with chronic disease live better lives by improving health outcomes and psycho-emotional and psychosocial measures. However, arthritis charities that offer self-management programs in the United Kingdom, the United States and Canada anecdotally report significant drops in enrollment, and emerging data suggest that these types of programs are not a panacea for people attending them. This chapter will provide the reader with the following: an introduction to patient education and self-management; a discussion on participation rates in patient education and arthritis self-management programs; an overview of the 'state-of-the-art' in patient education and self-management programs; new ideas on patient education delivery models; tips on improving physician-patient communication; and suggested areas of research required to advance the area of patient education and self-management.