Connect-ROD - development and qualitative evaluation of a community-based group intervention to support well-being in patients with a rare or orphan disease.

Background: Patients living with various rare or orphan diseases (ROD) experience common psychosocial difficulties. Those need emerge from a combination of factors, such as the large variety of patients and the rarity of resources, as well as concentrated efforts on physical health needs that yielded increases in life expectancy and quality in patients. A gap is therefore rising in the consideration of psychosocial needs of patients, such as coping with the impacts of physical limitations, reducing social isolation and distress.

Impact of participation in Special Olympics Healthy Athletes® on attitudes of health professionals through direct contact with people with intellectual disability.

Purpose: The main objective of this study was to evaluate the impact of the participation of students and health professionals who provided free health screenings for athletes with intellectual disabilities (ID) during their sports competitions on their attitudes toward people with ID.

Methods: Quantitative data were collected from 51 students and health professionals during the 2017 Summer Games organised by Special Olympics Québec. A single group test-retest design was used.

Group intervention programs and their impact on well-being and quality-of-life for adults living with a rare or orphan disease - realist review of literature.

Purpose: Adults living with a rare or orphan diseases (ROD) experience common psychosocial difficulties that are often poorly addressed in usual care. This realist literature review aims to inform the development, evaluation and implementation of evidence based group therapy programs adapted to shared needs of patients living with various ROD.

Method: The review is based on an analysis of Context-Mechanism-Outcome configurations.

Impact of Railway Critical Incidents on Train Drivers and Effectiveness of Critical Incident Management and Support Protocols: A Recovery Trajectory Analysis.

Objective: Train drivers are regularly involved in railway critical incidents (CI) and critical incident management and support protocols (CIMSPs) have been developed to support them. This study describes the impact of CIs and evaluates the effectiveness of CIMSPs.

Methods: We interviewed 74 train drivers 1 week, 1, 3, and 6 months after a CI.