Health literacy needs related to incontinence and skin damage among family and friend caregivers of individuals with dementia.

Purpose: The purpose of this study was to describe health literacy needs related to incontinence and skin care among family or friend caregivers of individuals with Alzheimer disease (AD) and develop supportive and educational materials that address these needs.

Design: Descriptive.

Subjects And Settings: The sample included 48 family/friend adult caregivers of individuals who had advanced dementia.

Healthcare providers' perspectives on communicating incontinence and skin damage information with patients with dementia and their family caregivers: a descriptive study.

Communication between healthcare providers and patients/family caregivers about incontinence and associated skin damage is wanting, and information about healthcare providers perspectives on improving this communication is limited. A descriptive study was conducted using semi-structured, tape-recorded interviews with 11 healthcare providers with clinical expertise in geriatrics and dementia working in a large integrated healthcare system. The survey was developed by the authors based on a review of the relevant literature with guidance from a three-member Advisory Committee and consisted of nine open-ended questions related to communication with patients and families about incontinence and skin damage.