Publications by authors named "Caroline N Racine Gilles"
Background: Cystic fibrosis (CF) is a chronic genetic disease that leads to the accumulation of thick mucus in multiple organ systems, leading to chronic lung infection and affecting the body's ability to absorb nutrients necessary for growth and development. This cross-sectional, correlational study examined the potential effects of CF on students' psychosocial and academic development.
Methods: Forty adolescents with CF completed a battery of neuropsychological and psychosocial measures.
Article Synopsis
- - The study aimed to investigate the connection between lung health and health-related quality of life (HRQOL) in cystic fibrosis (CF) patients, using data from the Wisconsin Newborn Screening Project over a 2-year period.
- - Two groups were compared: those diagnosed early through newborn screening and a control group, with evaluations done through questionnaires and various pulmonary assessments.
- - While early diagnosis showed greater lung disease severity initially, overall pulmonary health changes did not correlate with changes in HRQOL scores over time, indicating no significant advantages of newborn screening for HRQOL outcomes.