Publications by authors named "Carolina Gustafson"

Estimation of multiple chronic condition (MCC) prevalence throughout adulthood provides a critical reflection of MCC burden. We analyzed electronic health record codes for 58 conditions to estimate MCC prevalence for () Research Program adult participants (N=242,828). Approximately 76% of participants were diagnosed with MCCs, with over 40% having 6 or more conditions and prevalence increasing with age; the most frequently occurring MCC combinations varied by age category (i.

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Article Synopsis
  • This study investigates where young adults (ages 18-39) with chronic illnesses die in the U.S. and the factors influencing their place of death, using national data from 2003-2018 with a sample size of over 405,000.
  • It was found that more than half of these individuals died in acute care settings, with racial groups (especially Asian/Pacific Islander and Black) and specific causes of death, like respiratory or renal issues, being significant factors affecting their place of death.
  • Interestingly, the rates of deaths occurring in acute care settings have decreased over time, and young adults with oncological causes of death were less likely to die in these settings, suggesting unique care needs and preferences in this
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Introduction: Both solid organ transplant candidates and recipients and their family caregivers have complex care needs and may benefit from palliative care. But palliative care is not often considered as part of transplant care despite palliative care being promoted as an important component of transplant care both before and after solid organ transplantation. Further, the current state of the science of palliative care in solid organ transplantation has not been well-documented.

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Background: Extracorporeal membrane oxygenation (ECMO), a rescue treatment for patients with severe pulmonary and/or cardiac dysfunction, is increasingly being used worldwide. A better understanding of long-term health-related quality of life (HRQOL) is needed.

Objective: To synthesize research on long-term (at least 6 months post-ECMO) HRQOL of adults treated with ECMO.

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The objective of this review was to detail the experiences of Muslim oncology patients receiving palliative and end-of-life care and identify where gaps in the providing of culturally aware care occur. We also sought to examine ways in which providers could be better educated on the needs of Muslim patients at the end-of-life and identify barriers Muslims faced when being treated with hospice and palliative care models developed for non-Muslim populations. We conducted a search in April 2018 in the National Library of Medicine and CINAHL databases using the search terms "palliative care," "Muslim," and "cancer.

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