The role of bioethics services in paediatric intensive care units: a qualitative descriptive study.

Background: There is considerable variation in the functionality of bioethical services in different institutions and countries for children in hospital, despite new challenges due to increasing technology supports for children with serious illness and medical complexity. We aimed to understand how bioethics services address bioethical concerns that are increasingly encountered in paediatric intensive care.

Methods: A qualitative descriptive design was used to describe clinician's perspectives on the functionality of clinical bioethics services for paediatric intensive care units.

Adolescents, parents, and providers' experiences of triadic encounters in paediatric diabetes clinics: A qualitative study.

Introduction: Adolescents with Type 1 diabetes are a cohort whose self-management of their diabetes care often declines during adolescence which can lead to adverse health outcomes. Research indicates that providers find it challenging to engage adolescents in communication exchanges during triadic encounters in diabetes clinics. Our study aimed to explore adolescents, parents, and providers' experiences of clinic encounters.

Developing rights-based standards for children having tests, treatments, examinations and interventions: using a collaborative, multi-phased, multi-method and multi-stakeholder approach to build consensus.

Children continue to experience harm when undergoing clinical procedures despite increased evidence of the need to improve the provision of child-centred care. The international ISupport collaboration aimed to develop standards to outline and explain good procedural practice and the rights of children within the context of a clinical procedure. The rights-based standards for children undergoing tests, treatments, investigations, examinations and interventions were developed using an iterative, multi-phased, multi-method and multi-stakeholder consensus building approach.

Reimagining a children's palliative care educational programme for registered nurses in response to the COVID-19 pandemic.

Background: Children with life-limiting conditions are a unique population with multiple health and social care needs. Key literature indicates the need for education to support registered nurses providing care, including palliative care, to these children. In response to the COVID-19 pandemic, a palliative care programme was converted to an online programme, adopting a blended approach between national and regional facilitators.

Encouraging adolescents' participation during paediatric diabetes clinic visits: Design and development of a question prompt list intervention.

Aims: To investigate adolescents' communication with healthcare providers (HCPs) and co- design a question prompt list as one part of an intervention to increase patient participation and communication at diabetes clinic visits.

Methods: Using an adolescent-led co-design approach we conducted interviews and focus groups with adolescents, parents, and healthcare providers (HCPs) and held workshops with both a Youth Advisory Group (YAG) and a Parent Advisory Group (PAG).

Results: Adolescents and parents identified challenges categorised into four themes: negative experience communicating with HCPs, lacking patient education leading to disinterest, low self-confidence out of fear of being wrong and forgetting to ask question(s).

: Parents' needs when breaking news and communicating to children with cancer and their siblings.

Purpose: This paper explores parents' experiences of breaking news and communicating to the child with cancer and their siblings, and identifies the supports parents request to help them in this role. This paper represents one component of a wider action research study which employed mixed methods to explore supports needed by parents of children with a cancer diagnosis in the Republic of Ireland.

Research Design: This paper reports on the survey phase of the study, which involved the distribution of a postal survey to 550 families of children in cancer treatment and remission.

Developing a video intervention to improve youth question-asking and provider education during paediatric diabetes clinic encounters: The Promoting Adolescents Communication and Engagement study.

Background: Research on long-term health conditions indicates that adolescents are not actively involved during their medical visits. Active involvement is essential because this can help adolescents learn how to self-manage their treatment plan.

Objective: To co-design a video intervention to improve youth question-asking and provider education during paediatric diabetes visits.

Subepidermal Moisture and Pressure Injury in a Pediatric Population: A Prospective Observational Study.

Purpose: To describe relationships between subepidermal moisture (SEM) and visual skin assessment of pressure injury (PI) in children.

Design: Prospective descriptive study.

Subjects And Setting: Twenty-four participants aged 8 to 16 years recruited from a pediatric orthopedic unit in a children's hospital in Ireland.

A qualitative systematic review of the needs of bereaved parents as they journey through the death of their child to cancer.

Problem Identification: This systematic review will examine the social support needs of bereaved parents in the specific context of pediatric cancer by synthesizing the qualitative evidence. Social support encompasses emotional, practical, informational, and meaning-making support needs.

Literature Search: The Joanna Briggs Institute procedures for conducting qualitative systematic reviews guided every stage of this review.

Principles for provision of integrated complex care for children across the acute-community interface in Europe.

This Viewpoint presents and discusses the development of the first core principles and standards for effective, personalised care of children living with complex care needs in Europe. These principles and standards emerged from an analysis of data gathered on several areas, including the integration of care for the child at the acute-community interface, the referral-discharge interface, the social care interface, nursing preparedness for practice, and experiences of the child and family. The three main principles, underpinned by a child-centric approach, are access to care, co-creation of care, and effective integrated governance.

Children's complex care needs: a systematic concept analysis of multidisciplinary language.

Complex care in the arena of child health is a growing phenomenon. Although considerable research is taking place, there remains limited understanding and agreement on the concept of complex care needs (CCNs), with potential for ambiguity. We conducted a systematic concept analysis of the attributes, antecedents, and consequences of children's CCNs from a multidisciplinary perspective.

Adaptation of a Voice-Centered Relational Framework to Explore the Perspective of Parents Who Have Transitioned to Home with a Child With Complex Care Needs.

Parents of children with complex care needs are generally willing to participate in research studies about their experiences; however, they are often challenged in their capacity to participate as they struggle to find time for family life. In our research with parents to explore their experience of transitioning to home, we deliberately sought an approach that would reduce the imposition on parents, while gaining insightful interpretations of their experiences. This article reflects on our experience of the process of discovering, analyzing, and interpreting parents' perspectives of their journey to home, when interviewed by telephone.

Administration of Home Intravenous Chemotherapy to Children by their Parents.

Objectives: Caring for a child with cancer can disrupt family life and financial stability, in addition to affecting the child's social, emotional, and educational development. Health care providers must consider ways to minimize the negative impact of illness and hospitalization on the child and family. This study evaluates a nationwide initiative to educate and support parents to administer chemotherapy to their child in their home.

Assimilation into daily practice: implementing and sustaining a randomised-controlled trial in a children's clinical service.

Aims And Objectives: To explore nurses' experiences of being involved in a clinically based randomised-controlled trial in a children's hospital.

Background: Numerous studies have explored the barriers to research utilisation by nurses. However, there is little information available on the methodological challenges and practical implementation of a study in a busy clinical setting.

Parents' perspectives of the transition to home when a child has complex technological health care needs.

Introduction: There is an increasing number of children with complex care needs, however, there is limited evidence of the experience of families during the process of transitioning to becoming their child's primary care giver. The aim of this study was to explore parents' perspectives of the transition to home of a child with complex respiratory health care needs.

Methods: Parents of children with a tracheostomy with or without other methods of respiratory assistance, who had transitioned to home from a large children's hospital in the last 5 years, were invited to participate in the interviews.

Management of pediatric skin-graft donor sites: a randomized controlled trial of three wound care products.

Skin grafts are used to treat many types of skin defects in children, including burns, traumatic wounds, and revision of scars. The objective of this prospective randomized controlled trial was to compare the effectiveness of three dressing types for pediatric donor sites: foam, hydrofiber, and calcium alginate. Children attending a pediatric Burns & Plastics Service from October 2010 to March 2013, who required a split-skin graft, were recruited to the trial.

Research priorities for children's nursing in Ireland: a Delphi study.

This paper is a report of a study which identified research priorities for children's nursing in an acute care setting in Ireland. A limited number of studies have examined research priorities for children's nursing. This study was undertaken against the backdrop of significant proposed changes to the delivery of children's healthcare.

Nurses' emotional experience of caring for children with burns.

Aims And Objectives: The aim of this phenomenological study was to explore the emotions experienced by children's nurses when caring for children with burns, in addition to ascertaining how the nurses dealt with these emotions.

Background: The nature of nursing practice is such that it inevitably generates some form of emotional response in nurses. The literature reveals that the manner nurses deal with their emotional experiences can impact on their nursing care.