Publications by authors named "Carleen Walsh"
Objective: To identify service-provided information needs among dermatological caregivers of patients living with ichthyosis.
Design: This is the first online international qualitative study to explore caregiver-reported service-provided information needs, using transnational focus groups (n=6), individual interviews (n=7) and in-depth emails (n=5). NVivo facilitated the coding process and Framework Analysis was applied.
Article Synopsis
- Ichthyoses are a group of rare genetic skin disorders that affect the whole skin surface and come with various challenges for affected patients and their caregivers.
- The project aims to identify core outcome domains to better assess the impact of ichthyosis on both patients and their caregivers, in clinical practice and research.
- Using a mixed-method study design, the project will involve literature reviews, qualitative studies, and consensus-building activities to determine relevant measures for ichthyosis outcomes.
Objective: To identify validated dermatology-specific and disease-specific psychosocial needs assessment tools for caregivers of paediatric patients with dermatological conditions. A secondary objective was to assess the adequacy of their measurement properties.
Design: Systematic review.