Publications by authors named "C Y Joren"
Article Synopsis
- The Individual Care Plan (ICP) for pediatric palliative care (PPC) was created to aid healthcare professionals in offering personalized care to children with serious illnesses and their families, but it's not being utilized for all who need it.
- Healthcare professionals expressed a desire to use the ICP to collaborate with parents on care plans to ensure coordination, continuity, and shared decision-making, particularly for children with complex chronic conditions.
- Future research should investigate whether implementing the ICP can fulfill these broader care objectives effectively in practice.
Background: The Individual Care Plan (ICP) for pediatric palliative care translates the general guideline recommendations into a personalized plan for the child. Various documents exist in pediatrics globally, aimed at facilitating anticipatory care or coordinating end-of-life care. The ICP aims both, but user experiences have not been studied post-development.
View Article and Find Full Text PDFBackground/objective: The Individual Care Plan (ICP) for pediatric palliative care was developed to provide person-centered care for the individual child and family. Currently, a lack of clarity remains regarding the use and function of the ICP in daily practice. To further implement the ICP, it is important to identify how parents and healthcare professionals use the ICP and which obstacles or benefits are experienced.
View Article and Find Full Text PDFHow to move forward in shared decision-making in pediatric palliative care.
Curr Probl Pediatr Adolesc Health Care
January 2024
Pediatric palliative care has grown immensely in recent years in the world. However, shared decision-making remains a complex process, especially in pediatric palliative care. In particular, a number of issues are priorities to improve the shared decision-making process and ensure high-quality pediatric palliative care for every child.
View Article and Find Full Text PDFShared decision-making in pediatric palliative care in the Netherlands.
Curr Probl Pediatr Adolesc Health Care
January 2024
Article Synopsis
- Shared decision-making (SDM) is a collaborative process where healthcare professionals partner with families to make treatment decisions based on the family's values and care goals.
- Recent advancements in Dutch pediatric palliative care, like the Individual Care Plan (ICP) and the Evidence-Based Guideline on Pediatric Palliative Care (DGPPC), have spurred increased interest in SDM and Advance Care Planning (ACP).
- Despite these positive developments, a significant cultural shift is still needed among healthcare providers, moving away from a paternalistic mindset to one that values the input and priorities of families in care decisions.