Publications by authors named "C N Barnard"
Background: Trust is a foundation of the therapeutic relationship and is associated with important patient outcomes. Building trust between parents of children with medical complexity (CMC) and physicians during inpatient care is complicated by lack of relational continuity, cumulative (sometimes negative) parent experiences and the need to adjust roles and expectations to accommodate parental expertise. This study's objective was to describe how parents of CMC conceptualize trust with physicians within the pediatric inpatient setting and to provide recommendations for building trust in these relationships.
View Article and Find Full Text PDFHousing Instability Screening and Referral Programs: A Scoping Review.
Jt Comm J Qual Patient Saf
January 2025
Article Synopsis
- - This scoping review examines the impact of housing instability on health outcomes and analyzes US health system programs that screen for and respond to this issue, revealing notable variations in methods and policies across regions and demographics.
- - A total of 30 studies from 2003 to 2023 were included, with most focusing on outpatient settings, primarily in academic hospital systems, and largely using custom screening tools rather than standardized ones.
- - The findings highlight a lack of consistency in screening and response programs, indicating the need for standardized definitions and methods to improve effectiveness and comparability in future research.
Objectives: To assess the use of a co-designed patient-reported outcome (PRO) clinical dashboard and estimate its impact on shared decision-making (SDM) and symptomatology in adults with advanced cancer or chronic kidney disease (CKD).
Materials And Methods: We developed a clinical PRO dashboard within the Northwestern Medicine Patient-Reported Outcomes system, enhanced through co-design involving 20 diverse constituents. Using a single-group, pretest-posttest design, we evaluated the dashboard's use among patients with advanced cancer or CKD between June 2020 and January 2022.
Article Synopsis
- Shared decision making (SDM) involves patients and clinicians collaborating to make informed healthcare choices, with clinical dashboards providing valuable information like patient-reported outcomes to enhance this process.
- A co-design initiative was executed over 14 sessions with multidisciplinary teams, including patients, care partners, and clinicians, aiming to develop a PRO-informed clinical dashboard tailored for patients with advanced cancer or chronic kidney disease (CKD).
- The co-design strategy showed strong success in its implementation, with high observer-rated fidelity and adoption scores, along with robust stakeholder representation, confirming its effectiveness in promoting SDM in these patient populations.
Article Synopsis
- The project aimed to create a Patient-Reported Outcomes (PRO) dashboard in the electronic health record (EHR) to enhance clinical decision-making by making PROs more interpretable and useful during patient visits.
- Using codesign principles, a diverse group of stakeholders collaborated from February 2019 to May 2020 to define the dashboard's features and layout, followed by pilot testing for usability.
- The dashboard, which effectively integrated PRO scores and clinical data, showed good usability in evaluations conducted with both patients and clinicians, highlighting its potential for improving patient care in an academic cancer center.