Publications by authors named "C Bergoin"
Breathing difficulties and exertional dyspnea are frequently reported in hypermobile Ehlers-Danlos syndrome (hEDS); however, they are not clearly explained. An impaired proprioception or the addition of a cognitive task could influence ventilatory control. How can the perception of lung volume be measured? Is lung volume perception impaired in hEDS patients? Is the breathing control impaired during a cognitive task in hEDS patients? A device was developed to assess the accuracy of lung volume perception in patients with hEDS and matched control subjects.
View Article and Find Full Text PDFIntroduction: Patients with short bowel syndrome (SBS) may exhibit enteric hyperoxaluria (EH), and the prevalence of oxalate nephropathy in SBS is likely underestimated. Plasma oxalate (POx) is a surrogate of systemic oxalate deposition and, consequently, may increase the risk of developing chronic kidney disease (CKD). The main objective of this study was to explore the distribution of POx levels in patients with SBS.
View Article and Find Full Text PDFArticle Synopsis
- - The study aimed to evaluate the effects of a 9-week rehabilitation program (RP) for patients with hypermobile Ehlers-Danlos syndrome (hEDS) over a 6-month period.
- - Out of 36 participants assessed, 22 completed the RP, showing significant immediate improvements in functional exercise capacity, balance, fatigue, and quality of life after the program.
- - Continued improvements were noted 6 weeks and 6 months after the RP in areas like functional exercise capacity, kinesiophobia, depression, and certain quality of life aspects, indicating the program's effectiveness.
Evidence of ventilatory constraints during exercise in hypermobile Ehlers-Danlos syndrome.
Eur J Appl Physiol
November 2022
Purpose: Hypermobile Ehlers-Danlos syndrome (hEDS) is a connective tissue disorder with many different symptoms such as pain, fatigue, dysautonomia, or respiratory symptoms. Among the respiratory manifestations described, the most frequent are exertional dyspnea and breathing difficulties. Mechanical ventilatory constraints during exercise could participate in these respiratory manifestations.
View Article and Find Full Text PDFPurpose: This study aims to determine from questionnaires, submitted to patients with Ehlers-Danlos syndrome hypermobile type (hEDS), what symptoms they perceive as having the most impact on their well-being and, according to them, what symptoms should be assessed.
Materials And Methods: Three rounds of online questionnaires were conducted following the Delphi method. The first round allowed us to obtain the most important symptoms to assess according to the patients.