Publications by authors named "Bukiwe Sihlongonyane"
Article Synopsis
- Interventions aimed at improving care for seriously ill patients often do not reach marginalized communities, including racialized, indigenous, and rural populations, despite their demonstrated benefits.
- The study focused on understanding the implementation of the Serious Illness Care Program in healthcare systems that primarily serve these underserved groups by conducting qualitative interviews and focus groups with healthcare team members.
- Three main themes were identified regarding implementation factors: patient-related challenges, specific elements of the intervention, and the health system's context; notable barriers include resource limitations and mistrust in healthcare, while mission-driven efforts and interprofessional collaboration were seen as supportive factors.
Article Synopsis
- The study evaluated a patient-friendly Workbook designed to help seriously ill patients and their caregivers engage in important conversations about their care.
- Twenty-nine participants provided feedback through surveys and in-depth interviews, highlighting the Workbook's safety, acceptability, and ease of use, with ratings indicating generally positive responses.
- The findings suggest that the Workbook is most effective when introduced by a trusted individual, emphasizing the importance of context and rapport in discussions about serious illness.
Systemic or structural racism describes an embedded pattern of explicit and implicit racial biases that, through policy and action, systematically confer advantage to white people and disadvantage Black, indigenous, and other people of color. Hospice and palliative care journals participate in this broader system of racial discrimination. Building on palliative care's explicit focus on patients' goals and values, which may in and of itself comprise a form of social justice in healthcare, palliative care journals and their publishers have an opportunity to lead others in cultivating anti-racist practices and explicitly promoting equity.
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